January 16, 2011

f this was a half-marathon, I am done this week. Tomorrow will be my 6th of the 12 cycle chemotherapy program. I’ve had my ups and down but somehow, I managed to get through it. I am still standing up and ready for whatever this disease throw at me.

Along the way, I came to understand myself and prioritize what is important. For instance, during my recovery week each food I take must be meaningful for quick recovery. Yes, meaningful is the key word and when applied across the board it takes a whole new perspective. A warm voice from my colleagues, a kind gesture to help me supplied with anti-nausea meds, or even a consoling hug from friends, gives new meaning for somebody thirsting for reassurance that things will turn out fine.

I guess there will always be uncertainty.  I understand that.  It is just that my foe (cancer) has taken many lives and I am not about to concede anything.

Which brings me to tomorrow. You have things to do and priorities. I have mine. All this will not matter if we don’t put meaning to each task, each relationship, or each day. It is not just walking to the store to buy something, it is about walking to the store and appreciating the sun, wind, or rain.  Ironically, for me tomorrow is all about the fresh taste of chemo toxins. Ha!

I will see you on the other side.

Cheers.

P.S. Did not do any running this week but did some chore work and cycling sessions.

January 10, 2012

couldn’t believe the energy I had this morning at my 5:15 am spinning class. I was angry and was taking it out on the bike. I was imagining myself attacking a hill on the climbs, then pushing, jarring, and coaxing the bike for the last sprint to the finish.

I hate cancer!

That’s payback, sucker. I am still up after you gave it your best shot.

Saturday early morning:

I drink my anti-nausea pill, Zofran. Oh no, only two left. I need to have this refilled. Nausea woke me up from an unrestful sleep and it is threatening to take over my day. My chemo ended Thursday, as usual, and I got my usual dose of vitamin infusion right after (given by my wife) to help me recover. Then, an injection of Neulasta Friday to boost my immunity.  I thought I was set for normal recovery.

Wrong. Very wrong. Nothing is normal this Saturday early morning. The house is quite but I am very nauseated. Got to eat. I crawl to the fridge careful not to disturb the wife sleeping and started with yogurt. It kept for a while, then out it goes. Ah, nothing like the taste of vomit to perk up your morning. I struggle throughout the day of trying to keep food in my stomach with apples, soup, bread, grapes, cherries, smoothies, whatever. My normal recover diet is not working. Each time I thought I make slow progress, out it goes. WTF.

My patience is getting short. My wife has never seen me this way before; struggling to cope, balled up in front of a plastic basin, nose dripping, mouth frothed with saliva and stomach mucous. She warns me if I keep this up she will bring me to the hospital. I snap and stubbornly said “NO!” I am so tired of being sick and I do not need another place where there are sick people. In solitude, I bear the pain staring blankly in front of the TV. I should not be hard on her. In all honesty, she is my life. I need her. A hospital bed would keep me from feeling her warmth beside me.  That’s the truth.

My meds are not working and it is almost gone. She calls the pharmacy for refills, then of course nothing is simple. Insurance problem. I have new insurance for the year. From the pharmacy she calls me, do have the new prescription card, babes? I don’t know, I replied in even tone holding down the frustration in my voice. The pharmacy is about to close too. Not my day, I guess. She pays the full price.

She tells me she will go to her hospital and get some saline solution for me. By now it is night-time and she finds me in the sofa recovering and have not eaten. Armed with two liters of saline solution and a paraphernalia of tubings and needles, she arranges everything as if I am in the ER. She is on a mission. She dismantles the curtain rod that was tied to our headboard, which we use to hang my vitamin infusion, then ties it to the back of the dining chair that she dragged beside the sofa in our living room. She hooks a liter of saline and connects all the tubings.

This is going to hurt, she tells me as she surveys my left hand for a good vein to stick. She ties a tourniquet, steadies my hand, sticks the needle, aims for the vein but it rolls. She pushes and chases the vein, then it collapse. That hurts. You are dehydrated, she tells me. You veins are rubbery and apologizes for hurting me more since I am already suffering. She moves to my right hand, surveys it, and feels something. She uses a smaller needle, since it is deep, and goes after it. I close my eyes expecting the worst. Success!

Back to present:

As I spin away, I look back at the events after finishing two liters of saline solution. I thought my agony had ended when I started to stabilized and got some intermittent sleep that night, but then comes diarrhea. I managed to contain it through the weekend. I gained back my strength and even made to a yoga class with mask on for protection. Now, I am attacking this hill in my spinning class . Push. Push. Push. I want to punish this cancer for putting me through the painful meat grinder. It even made me lashed out to those who love and care for me. I am going to kill this SOB. FU, cancer! It is payback time and I am also giving it to you full price. I HATE CANCER!

It was a good workout this morning. The sun was just rising when I finished too. New day. Another chance on life.

I lost 3.4 pounds. I need to gain it back by Tuesday. My stomach has shrunk from all the vomit contraction but I am slowly eating my way back. Today, after that hard workout, breakfast was a pancake along with a three-egg cheese omelette, then later I snacked on half a bag of edemame pods with green tea while working. For lunch, baked mac n cheese I made with egg wide-noodles, fontina, mozzarella, and parmessan cheese, then I snacked on apples and edemame again. For dinner, a bowl of lentil vegetable soup with toasted garlic bread and finish off with fresh avocado with milk as dessert. But wait…as I was writing this I craved for pasta, Maggiano’s spaghetti marinara and some calamari fritos. Done. After posting this, I think I will have ice cream before going to sleep.

Whoa is me. I am going to do this eating again tomorrow…sucks (joke). Life is good.

Cheers.

P.S.  I think I have used up all my allotted profanity for the year.  Sorry, mom, I promise to go to confession this Sunday.

January 2, 2012

m almost to the half-way mark. Tomorrow will be my fifth round of chemo. I need to complete six rounds of chemo treatments after which we re-stage. This means I need another PET/CT scan to see if I am responding to the current treatment. We are looking for the shrinking of the six nodules in my lungs, at best no nodules at all. Yes!

But as they say, we take it one step at a time and perhaps enjoy the moment. Last Saturday, my wife and I did six miles at the lakefront. It was a beautiful sunny but cold day. There were other runners taking advantage of day but I think most of them are Boston-bound (Boston marathon April 16). I can only dream of qualifying for Boston or maybe I run use Frank’s qualifying time (see related post ‘I am ready‘)…hehe.

Another dream is running NYC marathon. Well today they opened up the lottery registration so I signed up. This is my fourth time to enter the lottery and hopefully I get lucky this year. If not, there is always next year. Yes, one must never lose hope, like I will be cancer-free some day. Not today, definitely not tomorrow, but one of this day.

Cheers.

P.S.  The plan is to attend my 5:15 am spinning class then go to the cancer center to ‘gas’ up.    Have a good day.

December 31, 2011

 am sitting here on New Year’s eve trying to think of something profound to say. The year is about to pass and there must be something good to say of 2011. Yes, there is: I made it.

I had full expectation at the start of 2011. Each year I can only hope for a full remission so I can continue to experience the blessings of life. Thus, it is with that feeling that I say I am grateful I have made it this far.

My friend, Noreen, wrote something wrote in her post here about being ‘Normal’. As she completed her therapy, our lives have continued. There are those who are still on chemo therapy, gone to vacations, got married, had kids, and passing of family and friends. I remember coming out of medical leave, twice, and my company is still there. Yes, life goes on like being ‘normal’. But it need not be, because you can make it special, unique, or even meaningful.

That’s it!

I find joy in seeing people change for the better. Whether it is a change in diet, picking up for new relationships, or even taking up running. It gives meaning to all the bad days I endure due to chemo. Somebody is waiting for me out there and that is enough for me to get up and run my heart out.

Happy New Year, everybody!

Cheers.

P.S. Skye, thanks for your Christmas post.  Love the pics.

Christmas means different things to different people, though I suppose sadly nowadays Christmas might not mean an awful lot to some folk.

Up until last year this probably best summed up Christmas in our household -

(lucky Santa)

 it was often a wonder that Santa and his sleigh ever got passed out house with all that lot waiting for him under the tree…  But this year with my youngest daughter now 11 she announced that she knew there wasn’t a Santa after all so its kind of an end of an era – no more creeping around trying to fill the kids stockings without waking them up, finally getting to bed around 2am, only for the girls to wake at 2.30.  You too??!

My hat shows another view of Christmas -

(Wee Grumpy Runner)

This was taken last Christmas Eve after I’d been for an early morning run.  The hat is NO indication of my thoughts of Christmas – I just felt that anyone that couldn’t raise a smile seeing  me running round the village with a Bah Humbug hat should have been wearing one themselves.  So, tomorrow I will be donning my hat again, while my running buddy will be wearing reindeer antlers and we will have a Christmas jog through the village in celebration of the days ahead.

On a more serious note I can understand why sometimes Christmas isn’t such a happy occasion – illness, poverty, family separation or problems and a whole host of other issues can make this a trying time for people and its with them my thoughts will be with over this weekend, and into 2012.  I hope the coming year will be kinder to you…

So from Skye and our old labrador, best wishes for Christmas and the New Year

(Millie)

And even if you don’t celebrate Christmas I’d still like to wish you a Happy 25th December – have a wonderful day.

December 19, 2011

….and I am having chemo. What a crime!, as my friend and colleague Artie would fondly say. It is to describe a funny and ironic situation. My nurse told me “why don’t we move your treatment so you can celebrate your birthday.”  Nope…and miss out on the fun?

What difference does it make? It is the sh*t on a different day. Since being diagnosed with cancer, I sometimes jokingly tell my wife everyday is my birthday. Also, in the cancer world, my birthday should have been March 20, 2008 when I was first diagnosed with colon cancer; November 10, 2009 when it came back and affected my liver; July 29, 2011 again it came back affecting my lungs this time.  Take you pick.  So it does not matter.  Everyday is my birthday.

My plan is to push through with it tomorrow. In fact, I am going to start it by attending a spinning classes (aerobic exercise on stationary bike) 5:15 am at my health club. Afterwards, quick breakfast then go to my chemo treatment. That should keep me busy all the way to Christmas. I am sure the Grinch will be waiting for me in the hole but tough luck, Grinch, it will be just be temporary.

I have completely accepted my situation.  I will have good days and bad days.  On good days I will continue to run and on bad days I will hang in there for you.  Let’s get this party started.  I invited Justin and Usher to kick it off, Noreen.  Let’s dance.

Happy Birtday!

Cheers.

P.S. My thoughts and prayers to my cousin, Manuel, who started his chemo today for stage 4 esophageal cancer.

December 13, 2011

Hitting the wall or the bonk is an expression among runners when you have totally depleted your energy or glycogen stored in the liver. Depending on your conditioning, it comes normally around mile marker 20 of the 26.2 miles marathon. It manifest itself with by sudden fatigue and loss of energy.

It felt that way during my last chemo (round 3). I felt I have hit my limit and was struggling to continue. It was a struggle to eat or even decide what to eat. I just want to be left alone. It took sometime for me to recover too, inspite of the vitamin bag infusion.  The cumulative effect of chemo is coming to bear; my hands are darkening again, few mouth sores are back, and the occasional nose bleeds. Skood (It’s good), as my colleague would say.

I was able to run 3.5 miles the other day and it was good to be out even if it was cold. It is really a different feeling when you are out.  Everything is alive.  I suffer when I am on chemo but after, I fee reborn again. Food taste better. I savor every morsel of food to tease my recovering taste buds. I am also more attentive during conversations and very much aware of my surroundings. In short, I do not want to miss anything during my recovery week. Cancer does not rule my life. Life is really beautiful when you see it through the eyes of second chances. You can make it beautiful too.

Beautiful is the Isle of Skye. Thanks to Skyetrekker (Vicki in real life), who covered for me and gave me a pull at the same time.  Skye, your story of the American Cancer Society singlet brought back memories of the lost or maybe stolen singlet I sent to Hola (Sally) in Madrid. The postal carrier just gave her the package without the ACS vest. From there, she watches her carrier to see if he is wearing it around his route. Funny. Or when Emteess (Michael) would send me pictures of him wearing the singlet in UK’s historical landmarks. Amazing.

I would like to think I am not the only blessed with good friends and loving family. Look around you. It is really up to us how much we welcome life at the same time push through our own ‘walls’.  Think about it.

Cheers.

I suppose that’s the wonder of the World Wide Web though – you get to ‘visit’ places and ‘meet’ people that 20 years ago probably wouldn’t have been possible.  And, in a way the same can be said for running.  It brings together folk from all walks of life - all abilities, nationalities, colour & religion can join together and just run.

That’s how I first came across Bo.  He appeared on the UK pages of a Health & Fitness blogging site but whereas most other Americans soon found their way back on to the US pages, Bo stuck around on the British site and it made a refreshing change for us to read about races & running on the other side of the Atlantic.  He soon acquired a large number of readers to his blog and it was with great sadness we then began following his battle with cancer.  It was written about with a huge amount of courage but also the humour came through as well, and before long we realised that Bo was fighting this all the way.  We were amazed that he has kept running throughout his treatments and the positivity that shines through the blogs he writes is inspirational to us all.   Various race shirts from the UK & Spain were traded for American Cancer Society running vests and worn for training runs and races throughout Europe, which I know got me some strange looks at times.  The races Bo & Irish run are huge compared to the races I’ve taken part in (just anything from a couple of hundred up to a couple of thousand people) so I realise it looked odd to see a couple of ACS vests in amongst the usual race tops running in our little Island Half Marathons.

 My ACS top is still my lucky race vest.  I got my Half PB (personal best) wearing it and I still remember the thrill of approaching the last corner before the finish line and realising that there was a possible pb.  However it was a narrow path and there was a couple of runners just ahead of me that appeared to be in no rush to get to the end and I couldn’t get passed them.  In my panic (and seeing the elusive pb slipping away from me…) I just yelled out the first thing that came to mind “PB COMING THROUGH”.  They jumped pretty smartly to the side after that and the race photo I have has the 2 other runners laughing at me as I pass them…  But my running, like my blogging has taken a bit of a dip since then.  Injury & general apathy meant I kind of lost interest in both for a while and I’m hoping by Bo asking me to write this it might kick-start both again.

I’d like to thank Bo for giving me the opportunity to write this today.  I’ve kept it short (was a bit worried about boring you all to tears!) especially as he said he might ask me to write again.  There again, maybe not after reading this

Vicki

]]> http://waddlingtales.wordpress.com/2011/12/12/2839/feed/ 2 skyetrekker http://waddlingtales.wordpress.com/2011/12/05/better-prepared-round-3/ http://waddlingtales.wordpress.com/2011/12/05/better-prepared-round-3/#comments Tue, 06 Dec 2011 04:14:02 +0000 Bo http://waddlingtales.wordpress.com/?p=2829 ]]> Round 3

December 5, 2011

here did November go?  I couldn’t believe it is already December.  I hear Christmas carole in the radio and of course lots of shopping ad.  I wish time would pass quickly when you are on chemo.

Tomorrow is round 3.  I am better prepared.  I have adjusted my diet to avoid constipation from the meds even before I start.  I did some running and yoga to keep me fit.  My demons (nausea and diarrhea) are creatures of habit.  They have tantrums like a child if you don’t pay attention to them.  I am prepared for them.

In my last post, I mentioned my friend, Vicki aka Skyetrekker, sent me a calendar she and friends did for from her beautiful homeland Isle of Skye, UK.  I asked her to post something for me while I am in treatment.  She said she will.  I followed her running blog and was very much amused by her adventures and Scotish humour.  That’s how I met her more than three year ago.  I have written about her too (see related post ‘I got buffed‘) and through her I learned about haggis (see related post ‘Dr. V (Part 2 of 2)‘).

I have never met her but I feel connected to her.  Someday I hope to meet her and perhaps run the Great North Run or London or the village where she lives.  Please welcome her if pops in.

Cheer.

December 1, 2011

 ”Hon, it’s happening again.” I said to her.

“What’s happening again?” she said with a concerned look.

“I am shedding again.” Then I laughed.  It is like autumn’s arrival.

I knew this thing would happen sooner but not just after the second round. I should be upset, concerned, or even vainly worried, but I welcome the moment. Ironically, it felt normal that’s why I had to laugh. I now belong again to a small circle of people; those living through cancer.

Recently, my friend Noreen, who gamely contributed to my blog, completed her treatment. She looks forward to growing her hair and the return of her taste buds. I am happy for her and confident that she can dance her way through survivorship. She leaves the circle, I take her place.

I know the road ahead will be full of new surprise even if I have experienced them before. I am just on my second cycle but some how this time around I think I am having…fun. I think it comes from my building curiosity on how to make most of the moment. I have visions of myself doubled over in the toilet, pale from vomit, with a smirk. Or getting bets from the family on how many times I have to go to the bathroom due to diarrhea.

Call those brain fart moments due to chemo toxins fogging my brain, but I am lucid enough to know this. I have gone through the cycle of miseries, pity parties, and tears as I deal with my demons. Have used coping techniques of meditation, running, yoga, tai chi, etc. to get me through them. So what’s left? Having fun.

I know I have strong support from you. Moreover, I know some are even willing to carry some of the load for me.  I do not wish this on anybody. But think about this, if you see me having fun are you going to stop me? Don’t worry, this round I am recovering well and will be ready again for next week. I am getting tremendous support and care that I am able to bounce back quickly.

They lengthen timing of my portable pump to take-off some edge in the toxicity of chemo, and I get vitamin infusion after completing the cycle. For my comfort, my bed now doubles as a hospital bed (minus call buttons).  Sweet. My nurse-wife took out a curtain rod with hooks at the end, then tied it to our headboard to hang the vitamin bag. Viola. It looks funny.  (Note: requires professional supervision, ok.)

Do-it-yourself hospital bed

Cheers.

PS: Vicki (aka Skye), thank you for early holiday gift you sent.  I met Vicki, that’s virtually, through my blog and she lives in Isle of Skye, Scotland.